Data Governance

The National Blood Authority Act 2003 states that the National Blood Authority (NBA) is ‘to liaise with, and gather information from, governments, suppliers and others about matters relating to blood products and services’ and to provide information, advice and assistance to various stakeholders under the national blood arrangements.

Data and information governance refers to the overall management of the availability, usability, integrity, and security of data.  A sound data governance arrangement must be comprehensive and include a governing body, a defined set of procedures, and a plan to execute those procedures.  Governance arrangements will exist at all levels within the sector and must be able to demonstrate their compliance against all required standards and community expectations.

The governance framework for data captured and managed at the national level within the sector needs to be able to guarantee and demonstrate:

  • transparency in decision making on data collection
  • control and obligations relating to the data held
  • accountability
  • data storage
  • data access and control
  • ethics.

All data held in national systems that are funded under the national blood arrangements are managed by the NBA on behalf of all governments.  All data containing personal information will be managed in accordance with the Information Privacy Principles from Section 14 of the Privacy Act 1988 (Cth).

To ensure obligations are met a National Blood Sector Data and Information Governance Framework is currently under development.  The draft Framework will be distributed to jurisdictional representatives by June 2013 for review and comment.  It is scheduled that this Framework will be published in the first quarter of 2013-14.

The NBA is also required to comply with the Information Publication Scheme and  Freedom of Information Act 1982.