Our role with bleeding disorders
We manage Australia's blood product supply under the National Blood Agreement.
Clinic staff use these products to treat patients with bleeding disorders such as:
- haemophilia A – deficiency in coagulation factor VIII
- haemophilia B – deficiency in coagulation factor IX
- von Willebrand disease – deficiency in von Willebrand factor.
Many Australians are living with a bleeding disorder. Haemophilia is the most common one.
Find out more about blood products.
The framework for the management of bleeding disorders in Australia
The framework provides an overview of the governance structures in Australia to ensure people with bleeding disorders have access to appropriate care and treatment. We developed the framework with support from the Australian Haemophilia Centre Directors' Organisation (AHCDO) and Haemophilia Foundation Australia (HFA). Read The framework for the management of bleeding disorders in Australia.
Australian Bleeding Disorders Registry
The Australian Bleeding Disorders Registry (ABDR) is a database used by:
- clinic staff who work with bleeding disorders
- Australian patients with bleeding disorders through the MyABDR app and website.
AHCDO supports a special group to manage data entry. The group makes sure data entry is consistent and correct across the ABDR.
MyABDR app for patients
Patients and carers can record bleeds and home treatments through MyABDR. MyABDR is secure and safe to use.
Access the MyABDR app.
More information
These organisations advocate for and support bleeding disorder patients.
- Haemophilia Foundation Australia(Opens in a new tab/window) is the national peak body representing people with bleeding disorders. It also coordinates some health professional groups(Opens in a new tab/window).
- Australian Haemophilia Centre Directors' Organisation(Opens in a new tab/window) (AHCDO) is the national medical body for haemophilia.
Get in touch
For more information, contact us.
Last updated: 27 Mar 2024