Our role with bleeding disorders

We manage Australia's blood product supply under the National Blood Agreement.

Clinic staff use these products to treat patients with bleeding disorders such as:

  • haemophilia A – deficiency in coagulation factor VIII
  • haemophilia B – deficiency in coagulation factor IX
  • von Willebrand disease – deficiency in von Willebrand factor.

Many Australians are living with a bleeding disorder. Haemophilia is the most common one.

Find out more about blood products.

See more information about bleeding disorders for patients.

Australian guidelines for haemophilia management

The guidelines support clinicians in managing patients with bleeding disorders.

We developed the guidelines with the Australian Haemophilia Centre Directors' Organisation (AHCDO).

The guidelines are intended to be practical. They help with many areas of your work.

Read the Guidelines for the management of haemophilia in Australia.

Australian Bleeding Disorders Registry

The Australian Bleeding Disorders Registry (ABDR) is a database used by:

  • clinic staff who work with bleeding disorders
  • Australian patients with bleeding disorders through the MyABDR app and website.

AHCDO supports a special group to manage data entry. The group makes sure data entry is consistent and correct across the ABDR.

MyABDR app for patients

Patients and carers can record bleeds and home treatments through MyABDR. MyABDR is secure and safe to use.

Access the MyABDR app.

More information

These organisations advocate for and support bleeding disorder patients.

Get in touch

For more information, contact us.

Last updated: 27 Mar 2024

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